miscarriage – Onward Hoe!

Mixed Emotions Birthday

Yesterday was Ella’s first birthday. It passed fairly quietly with no real attention drawn to it. I didn’t want people to say “happy birthday” because happy is entirely the wrong word, and I knew that any sympathy given would only make me sadder. And we are so, so tired of being sad.

So we spent some time decluttering the guest room that will become baby #2’s nursery, we watched a few episodes of Brooklyn Nine-Nine, I made plans with my family to work on some projects for the baby’s room, my husband played a video game while I wrote a thank-you note and played with my new fancy planner, I looked at Facebook, I looked at Pinterest, I cried a few times because I just couldn’t not, we watched a movie, my sister brought us lasagna, and eventually we went to bed.

I wonder if we should have done more, if we should have released some butterflies or lit a candle or done something meaningful. I wonder if we should have eaten cake or bought her a card or done something celebratory. I wonder if I should feel guilty for not doing any of those things. But I don’t feel guilty. I’m not ready to be meaningful or celebratory yet. It’s been a year (and a doozy of a year at that), and I’m stuck between emotions. I’m not as inconsolable as I was, and I even have a lot of joyful, happy moments, but I can’t yet bring myself to celebrate her too-short life. Maybe in the future we’ll have a family day or a remembrance day, but this year, I just needed to get through it.

And since I don’t believe in “shoulds” when it comes to things like this, I’m going to let my feelings be what they are and that’s that.

Maybe next year, we’ll get to do a cake smash and sing to a toddler. Maybe next year we’ll have a party and invite all our family and friends. Maybe next year I’ll make a big deal out of a first birthday and post pictures on Facebook. But all of that will be for my second daughter. I don’t know how Ella’s second birthday will go. We’ll cross that bridge when we come to it.

Innocence Lost

I know too much now.

Pregnancy used to be this mysterious, magical thing that happened to people, and in some ways, it still is. But I will never be able to think of it again in the same way. When people get pregnant on TV shows, all I can think is, “Nope. That’s wrong. That’s totally unrealistic.” And when people look at a positive pregnancy test and say, “We’re gonna have a baby,” I just cringe. I heard a story about a lady who had her nursery fully decorated and ready when she was only 7 weeks pregnant, and I said, “I REALLY hope she brings home a baby because she obviously does not know that losing it is a possibility.”

I know that reality all too well. I was talking to a friend yesterday about the experience of loss in general. A friend of hers was murdered two years ago, so she knows what it’s like to lose someone suddenly, unimaginably. I mentioned the Thestrals from Harry Potter – the horse-like creatures that could only be seen by those who had been touched by death – and I said I really appreciate J.K. Rowling for making those things up because they’re something I can totally understand. Once you’ve experienced a profound loss, you’re just different somehow. You may not see creatures that others can’t see, but you truly do have a different kind of sight.

I know what it’s like to hold a baby for the first and last time. I know the empty feeling that comes in the days and weeks afterward when you should still be carrying life, but you’re not. I know the fight you have when you need hope more than anything, but having it feels like a betrayal of your loss. I know the special combination of excitement and terror you feel from the moment the next pregnancy test is positive. I know how slowly the time seems to pass when every day counts.

I see pregnancy much differently now. I know what’s happening at every week and what the major milestones are. Someone (I can’t remember who, so if it was you, don’t be embarrassed) recently was surprised to learn that pregnant women think in terms of weeks. I said I was 24 weeks pregnant, and they were like, “How many months is that?” Maybe some women think in months. I don’t know. When you think in days, it’s hard to imagine thinking in months. I’m 25 weeks and 4 days today, and I have to think in days because my baby’s chances of survival literally improve with each passing day. If she were born today, she’d have a 2-3% advantage over yesterday. I don’t know if it’s healthy to think this way, but it seems to help me get through each day, so I do what I have to do. Like I said, I know too much.

I know how the cervix works. I’ll give you a demo if you bring me an empty toilet paper roll. If you give me an empty toilet paper roll and a pair of scissors, I’ll show you how cervical incompetence works. If you give me an empty toilet paper roll, a pair of scissors, and some yarn, I’ll show you what a cerclage is and what it does. But if you are pregnant now or hoping to get pregnant in the future, it might be better if you didn’t know because the fact of the matter is that it’s quite rare, and you probably won’t have to deal with it, so there’s no need for me to scare you.

I know WAY too much about remedies for constipation that are safe to use during pregnancy so that you don’t have to push at all to poop. For most pregnant women, this is great info to have in order to avoid hemorrhoids, but for those of us with cervical incompetence, it’s an absolute must. (This one is a little silly, maybe, unless you’ve dealt with it, in which case you know it’s no joke.)

I know what a sunshine baby is, what a rainbow baby is, and what a pot of gold baby is. I know about all the ways to put extra progesterone in your body and the reasons for doing it in the 2nd and 3rd trimesters. I could go on, but I think I’ve made the point. I wish I didn’t have all this knowledge. I wish I could be one of those moms on the mommy boards complaining about how I wanted a boy, but it’s a girl (because I have nothing else to worry or complain about). I wish I could be thinking right now, “I only have 3 more months to get the nursery ready,” instead of, “If she came right now, she’d be in the hospital for a few months, so we’d have time to throw something together.” I wish I could be blissfully unaware of the survival rates of preemies born at various gestational ages. But I can’t do any of those things. I know too much now.

This whole post feels a bit self-indulgent or whiny or maybe even arrogant to me somehow, but I don’t mean it to be any of those things. I might be complaining a little, but I don’t feel like I’m better than anyone else because I’ve been through something terrible. This is just what it’s like. And the truth is I have much to be thankful for, but that’s another post. This one doesn’t have a tidy bow on top and likely never will. I hope it makes no sense to you at all. I hope you gave up reading halfway through or read the whole thing and thought I should suck it up.

But if you can relate to everything I’ve said here, you aren’t alone. And now you know that I know too.

Happy Hanukkah

I know the holidays are over and this is very late, but it’s something I’ve been pondering for a few weeks now, and I feel like I just really got a handle on it myself, so I’ll go ahead and say it. Better late than never, right?

Just a tiny back-story to start: I made Christmas CDs for all of my coworkers for Christmas, except for my Jewish boss, who got a Hanukkah mix. I didn’t have a lot of Hanukkah music, but I found some really good tunes, and I ended up having more fun making that mix than the Christmas one. I’ve also enjoyed listening to it more. I thought, at first, that it was because those songs weren’t so familiar and played out, but the more I listen to them, I think it’s something different.

People keep asking me how my Christmas was, and I keep saying that it was good, but lacking. I did Christmas things because that’s what I do at the end of December, but I’m not really sure I celebrated Christmas this year.

I feel like some Christians might get upset or concerned when I say things like this, but just hang with me. I really preferred Hanukkah to Christmas this year. That doesn’t mean that I’m converting to Judaism or that Jesus’s birth is insignificant to me. Hanukkah and Christmas are not mutually exclusive holidays. Just because they happen at the same time of year does not mean that they are in competition. They simply celebrate different things. They tell different stories, and this year, my own story lines up better with the Hanukkah story than the Christmas story.

Christmas, for me, this year, was just too big. It was too overwhelming, too much to receive at one time, too much to change. Christmas is about a world-changing event. The way we count our years revolves around it. It was the beginning of a new era. It was THE BIG ONE for all mankind. But my heart is still too tender for that. Overwhelming is overwhelming whether it’s good or bad, and I couldn’t open up to the overwhelming joy of Christmas because I’m overwhelmed enough. Or maybe I’m just not in a position to see the big picture right now because pain causes you to focus in on it so that you can take care of it one step at a time.

Either way, I felt like while Christmas was happening all around me, I was oblivious to it. Christmas might have been like the sun rising, but I was sitting in a blacked-out room. What I had in the room with me, though, were candles, and they were just what I needed. If I had opened the curtains, I would have been blinded. The candles were just the right amount of light.

The story of Hanukkah goes like this (the extremely condensed version, but correct me if I’m wrong in any way): The Greeks had taken over the Holy Land and made it illegal to study the Torah. The Maccabees were the leaders of a Jewish rebel army that fought to get their land and their religious rights and traditions back. They won despite being horribly outnumbered and outarmed (is that a word?). The Greeks de-purified all the ceremonial oil in the temple, but the Jews found ONE jar that had been overlooked. It was only enough for one day, but it miraculously lasted for 8 days, which gave the Jews enough time to purify more oil according to their laws.

As I listen to music about this, I relate to it in two ways:

I have felt very ill-equipped to deal with my life over the past five months. As I look back on each week, I continue to see that things are easier than they were the week before, but I often still feel overwhelmed. Some days, the sadness is still very oppressive. But the Maccabees were overwhelmed and oppressed, and they fought back and WON, not by their own strength, but by that of the God who stood with them. That gives me hope.
There are days when I don’t know how much more I can take, but somehow, hope remains. There are days when I feel that my hope should have dried up a week ago, but somehow, it’s still going. I don’t know how, but it’s there. I’ve found one little jar of hope untouched by sorrow, and it’s keeping me going against all odds.

So happy Hanukkah, everyone. Whether you’re Jewish or not, may you experience the light of hope that miraculously continues to shine until your supply is replenished.

When Advent Hurts

We went to a Christmas Eve service at my mother-in-law’s church the other night. Why they had a Christmas Eve service 10 days early, I do not know, but that is beside the point. The point is that I broke down crying while trying to sing “Joy to the World” because I just don’t feel all that joyful.

When we found out I was pregnant, before we got the official due date from the doctor, we estimated that we’d be expecting a baby on Christmas Eve. I loved the thought of expecting our own baby as we also anticipated the celebration of the birth of Christ. I thought about how special Advent would be this year, how much more meaningful. I looked forward to the lessons I would learn and the ways I would be able to identify with Mary. I was excited about experiencing Advent in a deeper way because of my own state of expecting.

But instead of singing Mary’s song of rejoicing, I find myself identifying more with the Psalmist: “How long, O Lord? Will you forget me forever? How long will you hide your face from me? How long must I wrestle with my thoughts and day after day have sorrow in my heart?” Instead of feeling like joy has come to the world, I feel like I’m still longing and pleading for it.

Maybe “Joy to the World” is just not my song this year. Maybe this year, “O Come, O Come Emmanuel” is the one for me. I’ve always liked it, but this year, I understand it more. Mourn, lonely, hell, gloomy, shadows, dark, death, misery – these are things I get. There are also things I want – Emmanuel (God with us), wisdom, knowledge, freedom, victory, cheer, strength, mercy, peace.

I guess in a very sad, unexpected way, I am experiencing Advent in a deeper way. It’s just not the way I wanted. So I listen to this version of it on repeat and try to think that maybe we all go through cycles of painful longing and joyful receiving all the time, and it’s just unfortunate that my own personal Advent isn’t lining up with the one on the church calendar.

Context Clues

I’m reading Number the Stars with my class right now. If you haven’t read it, you really should. It’s a great story and very well written. Plus it’s short and on about a 4th-grade reading level, so it might take you a weekend to get through. It’s about a Danish family that helps their Jewish friends escape before the Nazis can “relocate” them.

My students are really enjoying it, and I’m using it to help them start getting comfortable using context clues to guess the meanings of unfamiliar words. We’ve done a lot of work on how to use the context to figure out what part of speech a word is, and now I’m starting to get them thinking about what’s happening so they can take a stab at the meaning as well. They still need a lot of help with it, though, so when they ask the meaning of a word, I walk them through the process by asking questions. Who is in this sentence? Where are they? What are they doing? What is that like? Imagine you were in this situation. What would you be doing? How would you do it?

Today, one of the words in question was “weep,” and I almost demonstrated involuntarily.

The context was that a Jewish mother and father were trying to escape with their baby when the Nazis arrived to investigate an unusual gathering of folks late in the evening. Everyone got through that particular encounter just fine, but it was understandably frightening, so when the Nazis came in, the mother held her baby tightly and started to weep.

Many of my students are mothers with young children, so I asked them, “What would you do if you thought someone might take your baby away?” And that’s when I almost lost it myself. I turned to write a definition of “weep” on the board, and I took my time erasing what was in my way and writing my definition so they wouldn’t see my face as I pulled it together. When I turned back around, I had on a happy face, and they were none the wiser.

I’m doing better. I really am. I don’t cry every day anymore. I can get out of bed and go to work. I exercise most days and eat good-for-me foods, and I feel good about myself for making those decisions. I laugh and sing and dance. I have more hope now than I’ve had since the summer. But I have also gotten better at hiding my feelings from most of the people I see regularly. It’s not that I’m trying to be fake. It’s that even though I don’t want to be sad, I still am, but I don’t want people to feel like they’ve done or said something wrong. They haven’t. If I’m crying, it is in no way your fault. I’m just sad. That is my context at the moment.

I know this is kind of a downer of a post, but today (this whole week really) has been hard, and I felt like I’d hidden it enough and needed to share it.

Pregnancy and Infant Loss Remembrance Day

I’m supposed to write today about my favorite and least favorite kinds of exercise, but I’m honestly not really feeling up to trying to make it interesting. I like walking, dancing, yoga, and Pilates. I kind of hate everything else. The end.

What’s really on my mind is that today is Pregnancy and Infant Loss Remembrance Day, and while I am having a really hard week, several friends’ due dates are either here or coming soon. These are the friends I was pregnant with. Even though I was a bit behind them, we were all in it together. Now we’re not.

Now I’m in a different kind of club – one people don’t like to talk or hear about, one that people apologize for accidentally reminding you you’re in, one you wish no one ever had to be in at all. But lots and lots of people are.

I promise you, if you know any women, you probably know at least one who’s lost a baby. If you know women currently of childbearing age, you probably know someone who has lost a baby this year. When we lost Ella, at least half a dozen women sent me private messages telling me that they too had recently experienced a miscarriage. If any of your loved ones have shared their heartbreak with you, please reach out to them this week. They are likely already thinking about the baby they don’t have in their arms or wombs; you won’t be reminding them of it. You will only be giving them the love and encouragement they desperately need.

Discouragement

Something happened to me today. A woman I see several times a week asked me when my baby is due. I don’t know how she didn’t get the memo about what happened, but I’ve been thinking this whole time that I don’t look pregnant anymore, or at the very least, I don’t look like I’m getting more pregnant. Apparently I’ve been wrong. Apparently, despite the fact that I’ve now lost 11 pounds, I still look six months pregnant. Ugh.

I know she just wasn’t thinking. I know time flies, and she probably didn’t realize it’s been three months since I told her I was expecting. I know she just didn’t take the time to put two and two together to figure out that things aren’t how they ought to be. I know she’s had her own problems and worries, and that what is the most enormous thing in the world to me is not so crucial to her. I know all of that, but it was still discouraging.

She just kept looking at me like she didn’t believe me – not like shocked disbelief that something horrible had happened, but like she thought I was lying to her about having lost my baby. Or like maybe I was never pregnant in the first place. I don’t know which, but it really seemed like she thought I was putting her on. What kind of sick person would that make me?

The whole thing made me immensely frustrated because I’ve made such positive changes in my lifestyle, which have resulted in me feeling a lot better most days. I still have sad days and sad moments, but for the most part, I feel SO much better about myself, my body, and my choices. And with one stupid question, this woman made me doubt all of it. One question brought all my sadness back up and made me really discouraged about my weight in spite of the progress I’ve made. One question made me want to come home, cancel my plans for the afternoon, put on my PJs, and crawl into bed. I did all of those things.

However, I did not do the other things I wanted to do – order a pizza and eat the whole thing, cry myself to sleep and nap until my husband got home, then bake brownies and watch a movie while I eat the entire pan (possibly including the pan itself).

I don’t know if it was simply not having the wherewithal to order a pizza, not having the energy to go to the store and buy brownie mix, the guilt of letting my fresh produce go to waste by not sticking to my meal plan, or the grace of Almighty God alone, but I ate my lunch as planned and watched an episode of Chuck on Netflix. Now, I’m going to drink some water, change into my workout clothes, and do my exercises. One decision at a time. One meal at a time. One workout at a time.

Healthy Start

I could go back as far as high school to start this story, but I won’t. I’ll just go back to when I was pregnant with a tee-tiny bit of back story. Like a lot of women, I have always struggled with my weight. Looking back at high school pictures, I can see now that I was reasonably thin, but I did not believe that at the time. After high school, things just got worse, and although I’ve tried now and then to lose weight, I just seem to keep putting it on. I didn’t even lose a pound when I was training for the half marathon I did in New Orleans.

When I was pregnant, the nurses at my OB/GYN practice liked to remind me that I was overweight. As if I hadn’t noticed that I was shopping at the plus-size store. And as if I wasn’t already self-conscious enough with my belly growing and people asking if I was sure I didn’t have two babies in there. Thanks, gals, for the ego boost.

But I wasn’t allowed to try to lose weight at that point.

Then we lost our sweet Ella, and through the kindness and generosity of SO many people, we ate a LOT of not-the-healthiest food in a very short period of time, and I put on another 8 pounds in just 6 weeks, which put me at the most I had ever weighed in my life, including the time I spent pregnant. This was getting serious. I knew that I needed to do something, and I knew I needed help and accountability to do it.

Well toward the end of August, I noticed that a friend from college was going to be leading a health and fitness challenge group for beginners on Facebook. I didn’t really consider myself a true beginner, but I knew I was REALLY out of shape, so I figured I would fit in just fine. We’ve been at it for almost three weeks now, and not only do I fit in just fine, it is HARD.

The exercise is hard, the eating plan is hard, and all of the feelings associated with it are hard. There’s the determination to succeed, the fear of failing, the desire to eat things I shouldn’t eat, the guilt of eating things I shouldn’t have eaten, the thought that I should just give up, and then back around to the determination to succeed. I’ve just come to think about food and exercise in a certain way, and changing my thought patterns is really difficult. But it IS time for me to make these changes, so I’m going to do it.

On a purely mental/emotional level, I need to do this now:

because I need to succeed at something after losing my baby.
because I need to feel like I’m in control of my body after the complete traumatic helplessness of PPROM.
because I need to treat my body well after being so angry at it.
because I still feel so sad so often, but endorphins make you feel so great.
because I need to be proud of myself for something.
because I need to keep myself busy until we are ready/allowed to try to get pregnant again.

So off I go on a frightening, exciting journey. If you can relate to any of this (with or without the pregnancy stuff), you are cordially invited to join me. I hope you will, and if you want, you can tell me that you’re with me, and we’ll keep each other going.

Self-Care

I have learned a lot of important things over the past few months. I’ve learned how badly people need each other, how we are meant to care for and be cared for by others. I’ve learned about grief, the process of grieving, the value of it, the necessity of it. I’ve learned that love is indeed as strong as death, and that both can fill your heart and break it at any moment. And I’ve learned that taking care of yourself doesn’t have to be selfish. We get the feeling that it is, but it isn’t. Taking care of yourself does not preclude you from taking care of others. In fact, if you don’t take care of yourself, how can you possibly take care of anyone else?

Will and I have always found that we take turns feeling good and bad, confident and scared, okay and not okay. We often feel good at the same time, but we seldom feel bad at the same time, and that works out nicely because when one of us feels bad, the other can be the caretaker. When one of us feels sick, the other can bring soup and juice. When one of us feels sad, the other can be there to offer comfort. And we’ve always given ourselves and each other permission to feel the bad things. It’s the only way to work through them. Even if I just feel cranky, I tell him, and he says, “I’m sorry you feel cranky. Is there anything I can do?” Sometimes there is. Sometimes I would feel a lot better if he took something off my plate or hugged me or talked it out with me. Sometimes there is nothing that he can do, but if I can rest and be alone for a while, that helps. Either way, he helps me take care of myself, and I try to do the same for him.

We’re doing a lot of self-care this week. We’ve taken a whole week off, and we’re in the mountains resting and celebrating our first/second anniversary. We’ve been married for a year, but we’ve been together for two. This week, here’s what self-care looks like for us:

sleeping in
sitting in our jacuzzi tub
reading
watching movies
enjoying nature
doing fun things
being active
cuddling
eating good food

Shoot, I may even get a pedicure. The resort where we’re staying gave us a coupon for $12 off any spa service, and with that, their pedicures are still overpriced, but we’ll see. That may be just the thing I need.

Anger Management

I wrote this post about two weeks after losing my baby girl, and about halfway through it, you can read all the things I was angry about at that time. If you don’t want to revisit the whole post, here’s the anger paragraph:

There just are no answers, and there might never be, which really pisses me off. What has medical science been doing for all these years that there are still no answers in one of the most devastating situations ever that SO many women go through? I’m also mad at my body for not doing its job. I’m mad at Facebook for showing me all of my pregnant friends’ happy pregnancy posts. I’m mad at the rest of the world for continuing to spin and function as usual when my world has completely crashed down around me. I’m mad at myself for getting so wrapped up in pregnancy that it became my whole world. I’m mad at the fact that women who don’t take care of themselves or their unborn babies have completely healthy pregnancies, that women who don’t want or love their babies still carry them to term, that we were supposed to be in the clear, having made it squarely into the 2nd trimester, and that we’d gotten so excited and told everybody the news just to have it completely shattered.

There are a lot of ways to deal with anger. I wouldn’t say that I did any of these things intentionally or even consciously, but they are what has happened in/to me regardless. I’m going to write this as sort of a how-to guide, but with the caveat that your process might look very different from mine, and that’s ok.

Give it time.

Honestly, I’m still angry about some of the things from that early post, although for the most part, as time has passed, my anger has been downgraded to frustration or converted to sadness. I’m extremely frustrated that there are no answers. In fact, at this point, my doctor has brand new questions instead of answers – questions that will require more tests that may only reveal more questions. It’s like my body has sent us all on a very sad, frustrating scavenger hunt.

Take control.

As for Facebook, well, I’ve just hidden the people I couldn’t bare to see for now. This is a trick I’ve learned within the past year with Facebook: It is precisely what you make it, so if you don’t want to be angry, unfriend or unfollow the people who make you angry. If someone always annoys you with their posts, you are under no obligation to look at their posts. Remove them from your news feed, and move on with your life. This is what I have done with a lot of pregnant friends. It’s not that I have anything against them personally. It’s just that I can’t handle their particular joy (or even struggles) at this particular moment. When I feel up to it, I’ll add them back into my news feed, but I think it will probably be next spring before I’m really ready for that. I have a couple of friends who are due right around my due date, and I know that when they start posting baby pictures and I don’t have a baby, that will be really hard for me, so I’ll just wait. I’m not mad about it, though, just sad.

Know your options.

I am still a little angry that there are women who abuse their bodies during pregnancy, potentially harming their unborn babies, but who still deliver healthy babies at full term; meanwhile, other women are desperate to conceive, go to great lengths to get pregnant, do everything right, and have one miscarriage after another. It just isn’t fair. Lots of things aren’t fair in the world, though, and I have to either learn to accept it or fight to do something about it. I don’t know which direction to go on this issue or how to go about it either way, but knowing my options helps a lot with my anger. If I know I need to do something, but I’m not doing it, then the only person I have to blame is myself. If I know there’s nothing to be done, then my anger turns more easily into sadness, which isn’t the most desirable emotion to have either, but it’s better than bitterness. Sadness softens the heart; bitterness hardens it.

Forgive yourself.

I’m not mad at myself anymore for getting excited about being pregnant or for getting wrapped up in the whole business. It was my first pregnancy, and I was both excited and terrified. I needed to do all the things I was doing in an attempt to wrap my brain around reality. There was nothing wrong with it, and it just shows how much I already loved my daughter. I’m also not sorry AT ALL that so many people knew we were pregnant and then knew that we’d lost her. Would I do it again if I had the choice? Absolutely not. Am I eternally grateful for the generous outpouring of love and support that happened as a result of a thousand people knowing about our loss? You have no idea.

Don’t be scared of it.

Anger is really hard for me because I’m not an angry person, and I don’t want to become one. I don’t want my heart to become bitter and hard. I don’t want people to walk away from encounters with me feeling stressed out, negative, or defensive. But experiencing anger and dealing with it is very different from holding onto anger and embodying it, and just because you feel angry, that doesn’t mean you are becoming an angry person. It means you are having an emotion – the right emotion for you to be having in that moment, most likely – and you can handle it. Acknowledge the anger, figure out where it’s coming from and where it’s directed, make sure it’s directed appropriately, and do something constructive with it (forgiving, taking control, working toward change, or accepting).